photograph by: Hope Jeffcoat (2018)

Baylee is a smart, active little girl who attends Oak Pointe Elementary School in Irmo despite having several diagnoses, including Down syndrome, an AV canal defect, hypoventilation, obstructive sleep apnea, gastroesophageal reflux, hypothyroidism, asthma, trachea broncus and duodenal web. She was born full term but spent time in the Neonatal Intensive Care Unit (NICU). Her AV canal defect was repaired through open heart surgery when she was six months old. Unfortunately, Baylee has quite the medical history. She’s had countless surgeries, hospitalizations and illnesses. But she always pulls through with a smile. Her strength is fierce and she is so determined. She enjoys playing with her two younger sisters, singing, music, dancing, riding four wheelers and dirt bikes, swinging and swimming. You can always count on a hug or a fist bump from Baylee. Her family knows she can do great things.

Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.

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