Eli’s diagnoses include laryngomalacia, tracheomalacia, bilateral hearing loss, Waardenburg Syndrome, and global delays. He has been through 11 hospitalizations due to breathing difficulties, double pneumonia, COVID-19, and feeding tube difficulties. Currently he’s in six therapies every week to help him with his development. His parents don’t know what the future holds for him, but they have set him up with everything he needs to get there.
His big brother, Enoch, enjoys helping Eli in therapy and caring for him. Lauren says Enoch sees nothing unusual about Eli’s needs and she hopes the world will do the same. She believes Eli’s story can help guide people to a journey of inclusion, advocacy, and acceptance.
Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.