Brian G, age 9

Photograph by Kayla Douglass (2023)

Nicknamed “Little Brian”, (Dad is Big Brian), this amazing boy loves to cuddle and get big loud kisses from his family. He also likes playing with beaded necklaces and slinkies and listening to music while swaying to the beat.

Brian was born with Rubenstein Taybi syndrome, a very rare, non-hereditary genetic disorder that affects many organ systems. He went through Leukemia when he was four. Despite everything, Brian does not let the painful things in life dampen his love for laughter and fun. He inspires many people through his courage, sweet disposition, and fun-loving outlook on life.

Currently, Brian is learning to use his communication device and demonstrating more and more the things he can do. Since every milestone is hard-fought for, each accomplishment merits a huge celebration. The level of joy Brian exudes when he is able to do something new is indescribable. 

Brian’s mom, Jessica, says her family is more resilient because of Brian. “We have stared death in the face on different occasions and come out victorious on the other side. We have lived in the hospital for an entire year. We have lifted each other up and gained a whole new perspective on life. We have become stronger through caring for Little Brian.”

Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.