Stephanie V, age 5

Photograph by Liane Almeida (2022)

Stephanie is a happy and smiling little girl. She enjoys time with her family and is fun to be around. She especially enjoys toys that play music because music makes her incredibly happy. She loves Spanish lullabies, and she tries to dance while sitting in her wheelchair. She also loves to be center of attention, and her siblings do their best to make her feel happy.

At seven months old, Stephanie suffered brain damage after a high fever and seizure episode. Her medical team was not sure if she would be able to walk or talk. Today, she is doing well in her therapies and is able to sit and to talk—she loves to say “Mama”. Despite her challenges, her mother, Angelica, says Stephanie is strong and resilient. She is a cheerful girl who is progressing toward milestones every day.

This little fighter is showing her family how to be strong. “Stephanie is our little princess—a unique angel who teaches us to work together, fight for her together, and have faith in her abilities because she will always surprise us with her efforts and her smiles.”

Stephanie es una niña feliz y sonriente. Le gusta pasar tiempo con su familia y es divertido estar con ella. Le gustan especialmente los juguetes que tocan música porque la música la hace increíblemente feliz. Le encantan las canciones de cuna en español y trata de bailar mientras está sentada en su silla de ruedas. También le gusta ser el centro de atención, y sus hermanos hacen todo lo posible para que se sienta feliz.

 A los siete meses, Stephanie sufrió lesiones cerebrales tras un episodio de fiebre alta y convulsiones. Su equipo médico no estaba seguro de si ella podría volver a caminar o hablar. Hoy en día, le va bien en sus terapias y es capaz de sentarse y hablar: le encanta decir “mamá”. A pesar de sus dificultades, su mamita, Angélica, dice que Stephanie es fuerte y resiliente. Es una niña alegre que avanza en sus habilidades del desarrollo cada día.

Esta pequeña luchadora está mostrando a su familia cómo ser fuerte. “Stephanie es nuestra pequeña princesa, un ángel único que nos enseña a trabajar juntos, a luchar juntos por ella y a tener fe en sus capacidades porque siempre nos sorprenderá con sus esfuerzos y sus sonrisas”.

Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.