Black and white photo of baby holding onto their parent and smiling

Lila B, age 1

Photograph by Jennifer Curtis (2024)

Lila, affectionately known as Missy, captivates hearts with her infectious glee. At just 19 months old, her journey has already been one of growth and perseverance.
Lila’s family learned about her diagnosis of Down syndrome at four weeks old. Starting therapy at two months, Lila has shown remarkable progress and is thriving! Lila’s family recognizes the importance of raising awareness about children with Down syndrome and other disabilities. They remain committed to spreading understanding and acceptance. They value the support and guidance they have found with other families and want more parents to know they are not alone. Lila’s family feels blessed by her health and progress. They embrace each day with gratitude, allowing Lila to blossom at her own pace. Her laughter fills their home, and her patience provides a source of inspiration.
Described as a bubbling spark of happiness, Lila delights in simple pleasures like playing with shadows and strings. Each milestone she achieves, from rolling over to saying her first word, fills her parents with pride. She reminds them to appreciate the beauty in simplicity.
Lila’s presence has enriched her family’s lives, making every moment feel precious.

Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.

Sponsored by:
Groucho's Deli