Jack Porter, age 4

Photograph by Kaylon Blackmon (2021)

Four-year-old Jack is very funny. You never know what he is going to do next, and everyone he encounters is instantly captivated by his charm. Jack loves to watch trains and do messy activities. He enjoys following his dad around and has a special bond with his nana.

Jack’s parents were told because of his condition Jack might not be walking until age two or later, but he began walking at 16 months. Jack has a diagnosis of KBG syndrome, a rare genetic disorder that approximately only 500 individuals have been diagnosed with worldwide. He also has a diagnosis of ADHD, speech delay, and hearing loss, but he always finds a way to communicate his needs or feelings non-verbally. Jack is never to be underestimated.

Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.

Sign up for our newsletter!