Bailey does not just walk into a room, she arrives. Bringing joy, sparkle, and the kind of quiet strength that leaves a lasting impression. Whether she is dancing on a stage or helping a friend, Bailey lives with intention and leads with love.

Known affectionately as “B,” Bailey was diagnosed with epilepsy and Coffin-Siris Syndrome (CSS), an extremely rare genetic condition, at age six. These diagnoses are only a small part of her story. In fact, Bailey is proudly celebrating three full years seizure-free, a milestone that speaks to her resilience and radiant spirit.

Bailey meets every day on her own timeline, in her own way. She has faced communication hurdles, experienced medical complexities, and is homeschooled to meet her unique needs. She continues to grow stronger, more confident, and more independent with each passing year.
Bailey’s favorite things are a true reflection of her eclectic personality: dancing, horseback riding, swimming, singing, reading, and caring for animals, especially dogs and cats. She also cherishes her time at church and is at her best when she is around people. From a young age, she has had a special ability to connect with others, bringing laughter, calm, and kindness wherever she goes.

Her parents recall moments of incredible pride like watching her perform in recitals or hop onto a horse with confidence. These experiences once seemed out of reach but are now part of her everyday joy. “She always finds a way to help,” her mom says. “That’s how she connects, by giving her time and her strength.”

At home, Bailey has shaped her family’s world for the better and showed them the power of faith. Her parents, who are her biggest supporters, are constantly inspired by her courage and the way she embraces life. “She has shown us what is possible,” they say. “She has helped us see what really matters.”

Bailey’s family sees a future where she continues to thrive, live independently, and confidently follow her own path. One thing is certain: Bailey’s remarkable story is just getting started.