Kamari, affectionately known as Kami, is a vibrant and joyful child whose journey has been one of perseverance, growth, and light. Her family’s introduction to Family Connection marked the beginning of a supportive and empowering chapter in their lives, as they sought resources and guidance to help Kami thrive.
Kami has achieved incredible milestones that reflect her determination and resilience. One proud moment for her family was when she learned to put herself to bed independently, an accomplishment that demonstrated her ability to grow and adapt. She continues to make strides, including working on skills like chewing and expressing herself nonverbally in ways that radiate her personality and emotions.
Challenges have been a part of Kami’s journey, including navigating the complexities of her diagnosis, cerebellar vermis hypoplasia. This condition affects her coordination and motor skills, presenting unique hurdles for her daily life. Despite the challenges, Kami’s mom remains steadfast in ensuring her daughter receives the support and opportunities she deserves.
Kami’s presence brings immense joy to her family. Her infectious smile, love of music, and playful personality are nearly always present. She has a gentle yet strong-willed spirit, letting her family know when she wants to hear her favorite song or participate in an activity. Her bond with her sister, Jami, is especially heartwarming, as the two share moments filled with love and laughter.
Kami’s strength and perseverance inspire everyone around her. She faces her daily challenges with grace, showing her family the importance of gratitude, patience, and hope. From her first steps toward independence to her ability to communicate joy and love without words, Kami’s journey is a testament to her incredible resilience.
Looking to the future, Kami’s family hopes to see her continue to grow and gain independence in her own unique way. They dream of her experiencing life with joy and confidence, always surrounded by love and acceptance.
Family Connection of South Carolina provides services and resources to families who have a child with a disability or specialized healthcare need. Since 1990 we have served more than 100,000 families and today our services are needed more than ever. We focus on parent-to-parent support, guidance with navigating the complex healthcare system, and assistance with school meetings and special education plans.