This comprehensive Journey Workbook is a practical, all-in-one organizational tool designed to help families manage and document every aspect of a child’s disability or chronic health condition. It provides structured sections for capturing a child’s personal story, daily care needs, medical history, medications, equipment, healthcare providers, insurance details, and emergency information. By centralizing critical records and notes, the workbook helps families easily track important information, share it with care teams, schools, and providers, and stay prepared for appointments, transitions, and unexpected situations.
The workbook also serves as a powerful education and advocacy resource, guiding families through special education processes such as IEPs and 504 plans. It includes step-by-step preparation tools for education meetings, goal-setting worksheets, sample letters, meeting agendas, note-taking pages, and checklists to support effective communication with schools. Designed to grow with the child over time, this workbook empowers families to stay organized, informed, and confident as they advocate for coordinated care, meaningful educational support, and successful transitions throughout their child’s journey.
